Sunday, August 23, 2009

Hidden Blessings

This might be a lot of information, so you don't have to read it, and it could gross you out. The only reason I would post this to my blog is I figure the only people reading it are my good friends who already know most of the information I am going to share. If you are a good friend and I have not told you yet, don't feel bad, it is a crazy story and I don't like to repeat it. I will try to explain with the best spelling I can manage, in light of my limited understanding of the medical terms. We announced to our family on Father's Day that we were expecting a baby January 6th. That very week my Dr. decided I was measuring a little big and wanted to do an ultrasound to make sure we had the dates right. From there all the drama began. The ultrasound showed that the baby had these very large looking sacks of fluid behind the head and spine called Cystic Hygromas. Cystic Hygromas usually means that the baby has one of a number of abnormalities, like Down Syndrome, Turner Syndrome, etc.

So we decided to have a genetic test done to see what it was. We found out that the baby was male, but had an even worse diagnosis than we knew possible. Our baby had what is called Triploidy. He was made with one egg and two sperm. So he had three complete sets of chromosomes. What this ultimately meant was that he had a body that was not viable for life. Most babies with Triploidy do not survive the pregnancy, and the longest anyone has lived with Triploidy was 5 months. It is very, very rare, and not likely to happen again to us. The doctors said there was no risk to my health, so we just had to wait knowing the end was not a happy one. I had a lot of mixed feelings about knowing all this ahead of time, and not knowing what to expect. I was a little depressed and had a lot of anxiety. I worried that he was suffering and would suffer a long time in a crippled body. In hind sight, I realize now that knowing all this informaion early enabled me to do all of my mourning for the baby before it all happened, so it was a blessing. I was also very sick, even more than previous pregnancies. So much of my summer was spent on the sofa, while my kids watched TV and Cameron worked. Well, the pregnancy progressed to about 17 weeks. On the 23rd of July, I had a full scan of the baby. He was starting to show signs of more deformities and his heart was slowing down. That night, we went to the emergency room because I was having chest pain. The hospital did the normal tests on a pregnant woman and did an ultrasound, and the baby's heart was still beating. They determined that my blood levels were close to being abnormal and my blood pressure (which is normally extremely low) was extremely high. They did not worry about the odd blood levels because it was unheard of to have Preeclampsia before 20 weeks in pregnancy. The chest pain they thought might be an ulcer so they sent me home and said take some tums. So Friday the 24th I was still having chest pain and convinced Cameron that I needed to go back and stay until they figured out what the chest pain really was. This time my blood levels were very off. I had a preeclampic syndrome called HELLP, which is unheard of before 20 weeks in pregnancy. This syndrome causes your liver to shut down and then other organs follow suit. They also ordered another ultrasound, and we found out that the baby's heart was not beating, resulting in a huge relief in my mind since he would not be physically suffering anymore. Also, this was a huge blessing because my symptoms were so dangerous that the only way to make me better was to deliver the baby. I am so glad for the timing of this all. I was never faced with choosing my life over his. The ultrasound also showed that I had Placenta Previa, which is dangerous for mom and baby. Because my platelet count was low due to having HELLP, there was a danger that I would bleed a lot from the Placentia Previa when they delivered the baby. They preformed an emergency DNC on July 24th. The procedure was to only be about 30 minutes. After an hour and 15 minutes, Cameron was getting worried. Eventually, the doctor came out and told him that I was doing well but had lost a lot of blood. They were going to do two blood transfusions, and the doctor suggested Cameron should go home and come back tomorrow. Well, after two more transfusions, four total, I was almost 100% normal, but they still needed to figure out my chest pain. The chest pain was part of the blood levels being off, which caused these things called plural effusions on my lungs. They are like sacks of fluid on the tissue surrounding my lungs. The doctors resolved that problem with medication. Wednesday, the last day in the hospital, the doctor reported the pathology results. This is the weirdest of all the things that happened. The results indicated that I had a thing called a Partial Molar Pregnancy. It is caused from an egg that doesn't get fertilized correctly and a growth called a mole starts to form. It is like a cancer that can spread to other parts of your body. Anyway, they have to monitor me for 6 months to make sure it is all gone. I feel a little like I had an X-man in my womb. I wish it was better for him to have three sets of Genes to pick from so that he could choose the best of the 3, but that is not how it works. It really is a miracle to even have one healty "normal" child. All of these conditions were extremely rare. We have almost no chance of a repeat. Right now, I am so glad to be healthy, to have a wonderful husband, and two beautiful, healthy, and smart children. I can be content with that for now. I have been saying maybe a puppy would be nice. Cameron is not a fan of pets though. So we will see what is in our future. At least now we have to wait 6 months for either.


We did name the baby, unofficially. We call him Lliam Cameron LaDuke. We had a lot of love and support from our friends, family, and Tucson ward. A lot of people came to our aide especially the Berrys, Betina and Rob, and my mom, who stayed for a week to watch and care for the girls. We appreciate all the prayers and love we felt from family and friends. We know that those prayers were heard, and we were greatly blessed. Cameron's parents, along with some of their Indian friends, had been praying for a miracle, if that was possible, or God's will, hoping that the miracle would be that the baby would be normal and healthy. Later they decided the miracle was that I survived. I think there were a lot of miracles for our family through this experience. There were a lot of blessings that came from this experience that was the hardest trial in my short life. I have an increased love and appreciation for the children and husband I have. I am grateful to be home with my family and to be healthy and normal, to have energy, and not to feel sick anymore. I also have a better testimony of the atonement, the power of prayer, and the sealing power of the Temple. We are very grateful that this happened, and we look forward to meeting little Lliam. I feel lucky knowing he is a spirit who I will someday know and love in our family and that maybe he has some other important things to do now.


God be with you Lliam, till we meet again.

12 comments:

Allison said...

Oh my gosh, Addie! I am shocked and stunned.....and crying! I can't believe all you've been through and your amazing sense of gratitude. Your strength has always been something I have admired about you. I'm so glad to know you are recovering and doing well. Much love and a big hug! {{hug}}

The Ensign's said...

OK I'm like bawling over here!

You are such an awesome friend to me!
It's sad that it takes things like this to realize just how much you love and appreciate your family. I know that I love my family and they mean soooo much to me, but it's times like this that you REALLY see and understand that love.

I love you Addie! You are a wonderful wonderful person!

Powers Family said...

Addie, this was beautifully written. Your outlook and strength on the whole situation is amazing and examplary. I thought I was all cried out over this situation, but reading this proves otherwise. We love you and are grateful you are still here with us.

Bridget said...

Addie, I had no idea all this was going on! What an amazing story and you are an amazing woman for going through it and describing it with such perspective. I wish you the best and I'm glad things have turned out more or less OK.

Tennille and Nathaniel said...

This is still so much to take in, even the second time hearing it. I am so glad you are okay. You have such a positive outlook and amazing strength. What an example you are. What a blessing it is to know that he is yours forever.

Alli said...

Oh Addie, you and your family have been thru so much. Your attitude is inspiring. Little Lliam is a blessed boy to have such wise parents. I hope your recovery goes smoothly, we are thinking of you and your sweet family!

jeannie said...

Even though I talked to you almost daily during this, reading this beautifully written blog entry brings it back so vividly. You and Cameron were amazing, brave and wise. We are all so blessed at the outcome.

Fisher Family said...

Wow Addie...your little family is truly amazing. You are so strong and such a great example. Love you...

Salcido Family said...

Wow Addie, I had no idea. I guess that's what comes from not communicating on a regular basis and not regularly reading your blog either.
I am so glad to know that you are okay and are feeling better, even though the unfortunate circumstances led you to health.
Know that even though we don't see one another (ever) I do think of you and your family often.

Eva said...

Hi Addie, I've been away from your blog for a while, and would like to say (and add to what others said) thanks for sharing--it makes other mothers' trials more empathetic. My mom had a molar pregnancy. It was tough on our family, even if I was just a child at the time. I wish you renewed health and happiness, and your family all the best.

Becca said...

Addie, I am just catching up on your blog and my heart really goes out to you during this hard time. I am so sorry. And I'm so glad that your doctors could help you back to health. Thanks for sharing this experience with us!

Yaya said...

So sorry you had to go through such a difficult experience. Sounds like we should just be glad you're alive.
Love you, Brad & Allyson